Patient and Family Resources

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Websites

Histiocytosis Association

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

Erdheim-Chester Disease Global Alliance

The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease.

Histiocytosis Clinic in Minnesota

The Histiocytosis Clinic helps adults with a rare group of blood disorders that can cause a host of symptoms throughout the body.

Education about Langerhans cell histiocytosis (LCH), Rosai-Dorfman disease (RDD), Erdheim-Chester disease (ECD), hemophagocytic Lymphohistiocytosis (HLH), xanthogranuloma, malignant histiocytosis, and others

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The Histio-Care Network is a nonprofit organization recognized as tax-exempt under Section 501(c)(3) of the Internal Revenue Code. EIN: 42-2925285. Contributions may be tax-deductible to the extent permitted by law.

Located at 8056 Baird Rd. Groveport, Ohio 43125

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