Uniting Care, Science, and Community for Every Person Affected by Histiocytic Disorders.

The Histio-Care Network is a global collaboration of clinicians, researchers, and patient advocates working together to transform the care and improve the lives of individuals affected by histiocytic disorders, which include:

  • Erdheim-Chester disease (ECD)
  • Langerhans Cell histiocytosis (LCH)
  • Rosai-Dorfman disease (RDD)
  • Xanthogranulomas (XG)
  • Malignant histiocytic neoplasms (Histiocytic sarcoma, Langerhans cell sarcoma and interdigitating dendritic cell sarcoma)
  • Hemophagocytic lymphohistiocytosis (HLH)

We are dedicated to improving early diagnosis, advancing research, and sharing knowledge across borders — with a commitment to compassionate, personalized care.

The Histio-Care Network is a collaborative group of leading medical centers, researchers, and patient advocates dedicated to rare histiocytic disorders.

For Patients & Families

Education, support, and connections to global resources.

For Providers

Access to expert guidelines, monthly educational case discussions, and a collaborative network.

For Researchers

Opportunities to participate in multi-center studies, data sharing, and collaborative publications.

We are dedicated to improving early diagnosis, advancing research, and sharing knowledge across borders — with a commitment to compassionate, personalized care.

Making a Difference Together

  • Multiple collaborating centers worldwide
  • Clinical trials of novel therapies
  • 2,000 patients targeted in long-term follow-up study
  • Monthly clinical forums for providers
  • Dozens of active research projects advancing understanding

Ways to Participate:

Patients & Families

Access reliable information, connect with global support networks, and explore clinical trials.

Providers

Submit cases for discussion, access emerging guidelines, and join our monthly multidisciplinary calls.

Researchers

Collaborate on studies, share data, and participate in multi-center research initiatives.

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The Histio-Care Network is a nonprofit organization recognized as tax-exempt under Section 501(c)(3) of the Internal Revenue Code. EIN: 42-2925285. Contributions may be tax-deductible to the extent permitted by law.

Located at 8056 Baird Rd. Groveport, Ohio 43125