Patient and Family Resources

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Websites

Histiocytosis Association

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

Erdheim-Chester Disease Global Alliance

The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease.

Histiocytosis Clinic in Minnesota

The Histiocytosis Clinic helps adults with a rare group of blood disorders that can cause a host of symptoms throughout the body.

Erdheim-Chester Disease

Education about Erdheim-Chester disease

All Histiocytic Disorders

Education about Langerhans cell histiocytosis (LCH), Rosai-Dorfman disease (RDD), Erdheim-Chester disease (ECD), hemophagocytic Lymphohistiocytosis (HLH), xanthogranuloma, malignant histiocytosis, and others

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