Patient and Family Resources

Overview/General Topics

Overview of Adult Histiocytosis
2025 ECDGA Patient & Family Gathering in Barcelona

Under the Microscope
Histiocytosis Pathology

Interview on Approach to the Patient:
From Endocrinopathy to the Diagnosis of a Histiocytic Disorder

Understanding the NCCN Guidelines® for Histiocytosis in Adults Webinar – June 2021

Erdheim-Chester disease:
What do we know a century later?

Erdheim-Chester Disease:
Application of Precision Medicne in Clinical Management

Erdheim-Chester Disease:
What is it and what are the signs and symptoms?

Erdheim-Chester disease:
Treatment options after diagnosis

Erdheim-Chester disease:
Finding a specialist and long-term monitoring

Erdheim-Chester disease:
A review of updated guidelines in the molecular era

The Importance of Early Detection
Dr. Gaurav Goyal, University of Alabama, Birmingham

Treating Erdheim
Chester Disease with Dr. Ronald S. Go, MD.

Talk for adult patients with Histiocytosis and ECD
Organized by OR Association and HA

Long-term outcomes among adults with LCH
w/ Dr. Goyal and Dr. Acosta Medina

Pulmonary Hypertension in
Pulmonary Langerhans cell histiocytosis

Rosai Dorfman Disease
From Rare to Understood Webinar

“How I Diagnose Rosai-Dorfman Disease”
with Dr. Ravindran and Dr. Rech

Malignant Histiocytosis Pathology Interview
with Dr. Aishwarya Ravindran and Dr. Karen Rech

Malignant Histiocytosis Clinical Interview
with Dr Gaurav Goyal and Dr. Gordan Ruan

Malignant Histiocytosis
Challenges in Clinical Management

Why Research Matters
with Gaurav Goyal, MD

Histiocytosis & Survivorship Working now, for the future of histiocytosis